Rare Cancer Advocates Network position paper on National Cancer Control Plans

22 May 2025

The Rare Cancer Advocates Network has issued a position paper urging national health authorities across Europe to incorporate dedicated and clearly defined sections on childhood cancers and rare adult cancers within their National Cancer Control Plans (NCCPs). Currently, only a limited number of NCCPs address these areas, and this omission contributes to substantial disparities in healthcare access and outcomes.

The position paper presents clear, evidence-based recommendations designed to assist policymakers, healthcare professionals, and patient organizations in making National Cancer Control Plans more inclusive and equitable. By aligning with EU health initiatives, this practical advocacy tool aims to enhance care for children with cancer and adults with rare cancers across Europe.

You can access the position paper here.